General Information (including ICD-9/-10 Codes)

Description :

  • anxiety disorder (neurosis) with manifestations of obsessions and/or compulsions
  • severity-dependent impact on quality of life in social functioning, marriage and family relationships, socioeconomic status and employment

ICD-9 Codes :

  • 300.3 obsessive-compulsive disorders

ICD-10 Codes :

  • F42.0 predominantly obsessional thoughts or ruminations
  • F42.1 predominantly compulsive acts [obsessional rituals]
  • F42.2 mixed obsessional thoughts and acts
  • F42.8 other obsessive-compulsive disorders
  • F42.9 obsessive-compulsive disorder, unspecified

Definitions :

  • obsessions are recurrent and persistent thoughts, impulses or images experienced as intrusive and inappropriate
  • compulsions are feelings of being driven to perform repetitive behaviors or mental acts in response to obsession or according to rules that must be applied rigidly

Types :

  • 4 predominant patterns
    • contamination - washing
    • doubt - checking
    • intrusive obsessional thoughts - no compulsion
    • obsessional slowness

Who is most affected :

Incidence/Prevalence :

  • prevalence of OCD in adults
    • national surveys of prevalence of OCD in adults ages 26-64 years report annual prevalences ranging from 1.1% to 1.8% and lifetime prevalences ranging from 1.9% to 2.5% in United States, Canada, Puerto Rico, Germany, Korea and New Zealand; with one outlier (Taiwan had 0.4% annual and 0.7% lifetime prevalence) (J Clin Psychiatry 1994 Mar;55 Suppl:5)
    • 1-month prevalence in United Kingdom was 1% males and 1.5% females in national survey; 6-month prevalences ranged from 0.7% to 2.1% in 9 population surveys (Br J Psychiatry Suppl 1988;(35):2)
    • 2.8% men and 0.7% women in Iran have OCD, based on study of 25,180 Iranian adults (BMC Psychiatry 2004 Feb 14;4:2 full-text)
  • prevalence of OCD in adolescents
  • cumulative incidence up to 0.165% at age 13 years in Denmark
    • based on national registries with all 669,995 children born in Denmark 1990-1999
    • cumulative incidence of OCD per 10,000 children at selected ages
      • 0.1 at age 5 years
      • 0.5-1 at age 7 years
      • 2.5-3.3 at age 9 years
      • 8-8.3 at age 11 years
      • 16.5 at age 13 years
    • Reference - Arch Pediatr Adolesc Med 2007 Feb;161(2):193

Causes and Risk Factors

Causes :

  • direct cause uncertain
  • socioeconomic, behavioral, cognitive, genetic and neurobiological factors have been implicated

Possible risk factors :

  • OCD in first-degree relatives associated with increased risk in meta-analysis of 5 studies, but individual studies inconsistent (Am J Psychiatry 2001 Oct;158(10):1568 full-text)
  • serotonin transporter promoter gain-of-function genotypes associated with obsessive-compulsive disorder
    • gain-of-function genotype about twice as common in 169 whites with OCD than in 253 ethnically matched controls
    • gain-of-function genotype about 2 times overexpressed in 175 probands with OCD from parents without OCD
    • Reference - Am J Hum Genet 2006 May;78(5):815

Factors not associated with increased risk :

  • not related to obsessive compulsive personality disorder (OCPD)
  • streptococcal infection appears to not increase risk of OCD or related symptoms
    • no evidence of increased risk of worries, obsessions and compulsions in prospective study of 399 children ages 4-11 years with symptomatic group A beta-hemolytic streptococcal infections, 207 children with nonstreptococcal pharyngitis and 196 well children followed for 12 weeks (Arch Pediatr Adolesc Med 2004 Sep;158(9):848)
    • streptococcal infection within 3 months or 1 year showed no statistically significant association with obsessive compulsive disorder in case-control study with 33 cases and about 130 controls ages 4-13 years (Pediatrics 2005 Jul;116(1):56)

Complications and Associated Conditions

Complications :

  • obsessive-compulsive disorder (OCD) associated with increased risk for suicidal ideation and possibly suicide attempts
    • cross-sectional study of 7,076 persons in the Netherlands
      • 809 (11.4%) had suicidal ideation, 205 (2.9%) had suicide attempts and 61 (0.86%) had OCD
      • 34 (56%) with OCD had suicidal ideation (odds ratio 10.57, adjusted odds ratio 2.12 [95% CI 0.99-4.55])
      • 13 (21%) with OCD had suicide attempts (odds ratio 10.01, adjusted odds ratio 1.63 [not significant])
    • longitudinal study of 4,796 persons (4,246 in analysis of suicidal ideation, 4,670 in analysis of suicide attempts)
      • new-onset suicidal ideation occurred in 2% and new-onset suicide attempts occurred in 0.84%
      • 17.6% persons with OCD developed suicidal ideation (odds ratio 9.63, adjusted odds ratio 6.33 [95% CI 1.11-35.96])
      • 6.5% persons with OCD developed suicide attempt (odds ratio 7.99, adjusted odds ratio 1.57 [not significant])
    • Reference - Arch Gen Psychiatry 2005 Nov;62(11):1249
  • depression, social phobias, separation anxiety, generalized anxiety disorder, panic disorder (J Am Osteopath Assoc 2002 Feb;102(2):81 PDF)

Associated conditions :

History

Chief Concern (CC) :

  • idea or impulse intrudes consciousness persistently
  • feeling of anxious dread accompanies idea or impulse
  • obsession or compulsion is ego-alien

History of Present Illness (HPI) :

  • consider mental rituals as compulsions, recognized as absurd and irrational, strong desire to resist obsessions and compulsions
  • common obsessions include
    • contamination
    • safety
    • fear of committing sin
    • need for order
    • sexual/aggressive thoughts
  • common compulsions include
    • cleaning
    • checking
    • counting/repeating
    • arranging
    • touching objects
    • hoarding
    • seeking reassurance
    • making lists
  • patients usually recognize and are distressed by irrational or excessive nature of obsessions or compulsions

Social History (SH) :

  • onset or exacerbation of symptoms may be related to stressful life circumstances, including pregnancy and postpartum period

Physical

Skin :

  • eczematous eruptions due to excessive skin washing
  • excoriations due to neurodermatitis or skin picking

HEENT :

  • hair loss due to excessive hair pulling

Neuro :

  • neurologic and cognitive exams often otherwise normal

Diagnosis

Making the diagnosis :

  • DSM-IV-TR criteria
    • presence of obsessions and/or compulsions
      • obsessions defined by the following 4 criteria:
        • recurrent and persistent thoughts, impulses or images experienced at some time during the disturbance as intrusive and inappropriate and cause marked anxiety and distress
        • not simply worries about real-life problems
        • attempts to ignore or suppress, or neutralize with other thought or action
        • the person recognizes that obsessional thoughts, impulses, or images or a product of his/her own mind (not imposed from without as in thought insertion)
      • compulsions defined by the following 2 criteria:
        • person feels driven to perform repetitive behaviors or mental acts in response to obsession or according to rules that must be applied rigidly
        • aimed at preventing or reducing distress or preventing dreadful event; not connected in realistic way with what they are designed to neutralize or prevent or are clearly excessive
    • at some point, patient recognizes obsessions or compulsions are excessive or unreasonable (this does not apply to children)
    • marked distress, time-consuming (take > 1 hour/day), functional interference or social interference
    • if another Axis I disorder present, the content of obsessions or compulsions not restricted to it
    • disorder is not due to direct physiologic effects of a substance or a general medical condition
    • specify with poor insight if, for most of the current episode, the person does not recognize that the symptoms are excessive or unreasonable

Rule out :

Imaging studies :

  • some have nonspecific EEG changes
  • positron emission tomography (PET) may show decreased metabolism in orbital gyrus, caudate nuclei, cingulate gyrus

Other diagnostic testing :

  • Yale-Brown Obsessive Compulsive Scale (Y-BOCS)
    • clinician-rated, 10 li scale designed to provide specific measure of severity of OCD symptoms regardless of type of obsessions or compulsions present
    • each li rated from 0 (no symptoms) to 4 (extreme symptoms), total range 0-40 with separate subtotals for severity of obsessions and compulsions
    • interrater reliability for total Y-BOCS score and each of 10 individual lis was excellent, with high degree of internal consistency among all li scores based on study of 4 rates and 40 patients with OCD at various stages of treatment (Arch Gen Psychiatry 1989 Nov;46(11):1006)
    • total Y-BOCS score significantly correlated with 2 of 3 independent measures of OCD and weakly correlated with measures of depression and anxiety in patients with OCD with minimal secondary depressive symptoms, based on ratings from 3 cohorts of 81 patients with OCD; Y-BOCS scale sensitive to drug-induced changes and reductions in scores specifically reflected improvement in obsessive-compulsive disorder symptoms (Arch Gen Psychiatry 1989 Nov;46(11):1012)
    • children's Y-BOCS used for childhood OCD (Psychol Assess 2003 Dec;15(4):578)
  • testing sometimes done by mental health clinicians
    • Rorschach - overattention to detail
    • Bender-Gestalt - use of small area
    • DAP - attention to head and general detailing
  • insufficient evidence to support routine testing for group A streptococcus or treatment with antibiotics or immune-modifying therapies in children with neuropsychiatric symptoms; literature review concludes that PANDAS is not a proven hypothesis (Pediatrics 2004 Apr;113(4):883), editorial can be found in Pediatrics 2004 Apr;113(4):907

Prognosis

Prognosis :

  • typically chronic course with waxing and waning of symptoms
  • patients who respond to medications may experience significant improvement in symptoms but are rarely cured of illness
  • most patients with OCD improve but continue to have symptoms at 40 years (level 1 [likely reliable] evidence)
    • prospective study of 251 patients ages 19-52 years hospitalized with OCD
    • 107 not followed due to death in 75 (including 6 suicides) and loss to follow-up in 32
    • 144 patients followed for mean 47 years after onset
    • outcomes at 5 years
      • 12 (8.3%) patients worsened
      • 38 (26.4%) patients had no change in clinical severity
      • 53 (36.8%) patients improved
      • 41 (28.5%) patients recovered
    • outcomes at 40 years
      • 11 (7.6%) patients worsened
      • 13 (9%) patients had no change in clinical severity
      • 51 (35.4%) patients improved
      • 69 (47.9%) patients recovered
    • of 41 patients who recovered at 5 years, 27 stayed recovered and 15 relapsed
    • Reference - Arch Gen Psychiatry 1999 Feb;56(2):121
  • streptococcal infections did NOT exacerbate symptoms in prospective follow-up of 47 children ages 7-17 years with Tourette syndrome and/or obsessive-compulsive disorder followed for mean 12.7 months (Pediatrics 2004 Jun;113(6):e578 full-text)

Treatment

Treatment overview :

Counseling :

Medications :

Surgery :

  • cingulotomy for intractable cases has been described in case series (level 3 [lacking direct] evidence)
    • 32% complete response and 45% partial response reported at mean 32 months after 1 or more cingulotomies in series of 26 patients with treatment-refractory OCD (Am J Psychiatry 2002 Feb;159(2):269)
    • in series of 15 patients with OCD treated with radiofrequency cingulotomy, only 4 had decrease of more than 35% on Y-BOCS scale and only 1 had sustained benefit for more than 1 year (Neurosurgery 2004 Mar;54(3):622)
    • anterior cingulotomy reported to provide response (at least 35% reduction in Y-BOCS scores and very much or much better on Clinical Global Impression) at 1 year in 6 of 14 patients with severe refractory OCD (Acta Psychiatr Scand 2003 Apr;107(4):283)

Other management :

Follow-up :

Prevention and Screening

Screening :

  • inquire about intrusive thoughts, rituals or tics; be sensitive to patients’ awareness that these may seem unusual or irrational
  • look for physical signs
  • listen for repeated requests for testing without clinical indications
  • screen for psychiatric comorbidities
  • potential screening tools
    • Yale-Brown Obsessive Compulsive Scale (Y-BOCS)
    • Quick PsychoDiagnostics (QPD) Panel is an automated screening test using hand-held devices that patients can use in physician's office which provides easily understandable printout of scores upon screening for depression, anxiety, panic disorder, obsessive-compulsive disorder, bulimia, alcohol/substance abuse and somatization; QPD Panel had 69% sensitivity and 97% specificity for DSM-IV obsessive-compulsive disorder in study of 203 HMO patients referred for first-time mental health consultation, 8% prevalence (J Fam Pract 2000 Jul;49(7):614)
    • obsessive-compulsive disorder subscale (OCS) created from Child Behavior Checklist (CBCL) and had high positive and negative predictive values in study of 219 children and adolescents (Pediatrics 2001 Jul;108(1):e14 full-text)

References including Reviews and Guidelines

General references used :

  • Clinical Evidence 2006 (search date 2004 May)

Reviews :

Guidelines :

Patient Information

Patient information :